A transparent approach to data-based research
Because we're serious about data security, governance and data-driven health outcome benefits, MedicalDirector is leading the industry in creating a safe and secure way for you to participate in data-based research and clinical decision support without the risks involved in providing third party access to patient-level data.
At MedicalDirector, we believe that you should have peace of mind when it comes to choosing to participate in data-based insight activities and that they should only be performed:
- where the project undertaken is aligned with the MedicalDirector vision (to enable ideal healthcare) and mission (to be the trusted leader in digital health)
- where third parties, including project sponsors, only ever receive insight and analysis that is not just de-identified but aggregated to protect the privacy of the patient, clinician and practice (noting that aggregation was a key outcome of the Department of Health sponsored Doll Martin review with respect to the PIP QI Eligible Dataset)
- where insight generated from projects is accessible to you and does no harm to yourself, your patients or their communities
- with transparency around how the data is being used and the scenarios in which a commercial return has been generated
- where analysis is performed in a safe setting within the MedicalDirector environment, keeping the data as close to source as possible and without the need to involve intermediaries to extract and access patient-level data
- where our customers and their patients have the ability to control whether they participate in one clear and accessible data governance model that covers consent for all requests.
It's important for you and your patients to feel informed when it comes to consent so please review the frequently asked questions before making a decision.
If you have opted to share data, you can then use our data extraction tool which has been designed to allow you to de-identify certain patient level data and then share that de-identified data with MedicalDirector (this will run in the background). In addition, you should discuss the following with your patients:
- de-identified data might be collected as a result of their patient consultation
- they have the ability to opt-out and where they do so, MedicalDirector will act promptly on this request
- if they elect not to opt out, de-identified information may be aggregated and analysed to form insight that may be made available by MedicalDirector to fee paying project sponsors.
You can be assured that these projects will never use, and project sponsors will never have access to, patient information in identified form.